Tuesday, October 30, 2007

Still at Hotel Vandy

Ryan still feels fairly miserable ....I think it is a combination of feeling terrible and not liking being in the hospital - he is very worried about being home in time for wearing his Power Ranger costume (or "Dark" Vader (it's one of the few words he still says incorrectly that I don't ever correct him because it's still so cute - the last of the baby talk :( ) or his Pterandon costume (dinosaur)). I told him I was certain that the hospital would make it a fun day and he could wear his costume there - he informed me he wasn't going to wear his costume with that stupid needle in!! His chest x-ray was fine and so far the blood cultures are negative also and he hasn't had any fever since Saturday morning - all very good - they stopped one of the antibiotics. The two things that need to happen now are for him to drink!! and for his neutrophils to begin to recover. They would like to stop the IV, but he isn't drinking - so prayers for a very thirsty boy and for his bone marrow to regenerate. We covet your prayers - you just can't even begin to imagine what they mean to us!!

Ryan funny: When we were last in for chemo - Ryan was kicked back in the bed sending me off for some snacks - as I was walking out the door he said, "you know Mommy - it sorta is like a hotel here - 'cept at hotels they don't have shots and needles and stuff." One part of me just smiled and the other part of my heart broke - as for Ryan- needles, blood work, chemo are just a part of his life now - so normal, yet so not normal at all ....... he is an amazing boy and I feel so blessed to get to be his mommy.

Psalms 5 is one of my favorites - this morning I read it out of The Message and I loved Psalm 5:3

"Every morning you'll hear me at it again. Every morning I lay out the pieces of my life on your altar and watch for fire to descend." Psalm 5:3


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